What to Do in the First Month After an Autism Diagnosis

The phone call or doctor’s words land with a thud you feel in your chest:

“Your child has autism.”

Even when you half-expected it, the official diagnosis can stop time.

Relief and worry wrestle for space.

Questions rush in, What now? Who can help? Will life ever feel normal again?

Pause.

Take one long, steady breath.

This isn’t the end of your story as a family.

It’s the start of clarity.

Begin With the Why

Great leaders always start with why.

Your why is already clear: you love your child and want them to thrive.

That love is the engine that will drive every decision you make from here.

You don’t need a ten-year plan today. You need perspective.

The diagnosis isn’t a verdict.

It’s a map.

It shows how your child experiences the world, so you can meet them there.

Instead of asking What does this mean for our future?, try What possibilities does this open?

That single mental shift, from panic to purpose, will guide the months and years ahead.

Step One: Breathe Before You Build

Your first job isn’t paperwork or therapy schedules. It’s to absorb the news.

Your child hasn’t changed.

The same laugh, the same sparkle in their eyes, still there.

Give yourself space to feel everything: surprise, grief, relief, even anger.

Strong leaders create room to think before they act.

Write in a journal.

Talk with a trusted friend.

Go for a walk and let the quiet remind you that nothing about your child’s worth has changed.

Step Two: Reframe the Story

It’s easy to imagine an endless list of limitations.

But a diagnosis is also a beginning.

It tells you where extra support can unlock growth.

Picture a coach studying game film.

The footage isn’t the game, it’s insight.

Likewise, this diagnosis is information you can use to design a strategy.

Your child’s strengths, quirks, and unique ways of seeing the world are still the headline.

Hold onto that.

Step Three: Focus the First 30 Days

The next month isn’t about doing everything.

It’s about laying a foundation.

Collect Key Records

Keep evaluation reports, doctor notes, and any assessments in one folder or digital drive.

This becomes your “playbook.”

Schedule One Core Follow-Up

Book a visit with your pediatrician or licensed developmental specialist.

Use the visit to clarify the report and outline immediate needs.

Observe and Document

Jot down what you notice each day: sleep patterns, reactions to noise, moments of connection.

These notes will help every professional you meet.

Learn in Small Doses

Use your resources. Read one trusted article or watch one short, quality video at a time.

Depth matters more than volume.

Step Four: Build Your Circle of Support

Think of this as assembling a personal board of directors.

Family & Friends

Share the news with people you trust.

Be specific when asking for help, childcare during appointments, a listening ear, a meal on therapy days.

Other Parents

Central Indiana has informal meet-ups and online groups where parents swap advice and simply listen.

Hearing “I can relate” can be a lifeline.

Professionals

Over time, you may add licensed therapists for speech, occupational, mental, or behavioral support.

Start with one or two priorities; you don’t need the whole team in week one.

Connection is your greatest asset.

No one should walk this road alone.

Step Five: Choose Your Team Wisely

When you’re ready, begin exploring therapy options.

Many families start with a developmental pediatrician, a licensed speech-language pathologist, or a modern ABA provider for early behavioral support.

Others begin with occupational therapy to address sensory needs and daily living skills.

Central Indiana has a strong network of therapy centers, some offer multiple disciplines under one roof. K1ds Count Therapy, for example, combines modern ABA, speech, occupational, and mental health therapy in a single setting.

Mentioned here only as an illustration, it represents the type of integrated care many families appreciate.

Insurance in Indiana typically covers core autism therapies, including ABA, speech, and OT.

Call your insurer early to learn what documentation they need, often just a diagnostic report and a doctor’s prescription.

This single step can save months of frustration.

Step Six: Support Your Whole Family

An autism diagnosis affects every family member.

Daily Life

Maintain routines that bring comfort, bedtime stories, Saturday pancakes, game nights.

Familiar rhythms provide stability for your child and siblings alike.

Siblings

Set aside one-on-one time so brothers and sisters feel seen.

Explain autism in simple terms: “Your brother’s brain works differently, so he learns in a different way.”

Yourself

Your resilience fuels theirs.

Claim moments to recharge, coffee with a friend, a solo walk, a favorite hobby.

This isn’t indulgence; it’s strategy.

Remember: you can’t help charge anyone else’s battery if yours is depleted.

Step Seven: Keep Perspective

Progress won’t follow a straight line. There will be breakthroughs and setbacks.

Some therapies will fit; others won’t.

That’s normal.

What matters is consistency and love.

Celebrate small wins: a new word, a shared glance, a calm bedtime.

Those moments are proof that growth is happening, even when it feels slow.

Closing: Lead With Love

A diagnosis is not a prophecy.

It’s a compass.

And you, as the parent, are the navigator.

One month from now, you won’t have all the answers, but you will have a clearer path.

One year from now, you’ll look back and marvel at the progress, yours and your child’s.

Start with why.

Lead with love.

Take one step, then another.

You already have everything you need to guide your child forward.

About

​Todd Root

Todd Root is President of Strategy & Partnerships at BEST (Building Essential Skills Together) and a Clinical Advisory Board Member for Cicero Therapies. Autistic by wiring, Wall Street-honed by experience, and fluent in tech and intelligence ideation and consulting, he rewrites the rules of neurodiversity by proving innovation, not conformity, is the true metric of success. Todd’s mission is simple: build the system that should have existed all along so every neurodivergent mind can thrive within community and self.